What mental illness feels like ...for me

Not everyone knows what it feels like to be mentally ill. And no two mentally ill people feel exactly the same.

But to me? Mental illness feels like...

... looking in the mirror and seeing the worst person in the world - and that's a secret you desperately need to hide from everyone.

... you understand the awful subtext behind everything people say - but then being told you don't. And you don't know whether people are just denying it, or it's really the truth.

... you always need to prove that you are worthy - of your job, of your friends, of your partner, of your family, of... well, existing.

... everyone in the world has your problems too, but they are just dealing with them a lot better than you are.

... you are listening to constructive criticism, but only hearing "you are shit. Like, you are really shit. I'm trying to say this as nicely as I can, so pay attention: You. Are. Shit."

... you just want to rant, and rave, and scream, and cry, and tell somebody all your problems. But then you don't want them to be burdened by your problems, or worse - to think less of you. 

... you're absolutely exhausted from being mentally ill, that even getting out of bed is a massive achievement. But of course you can't celebrate that because everyone gets out of bed every damn day.

... you know people care as such, but they don't want to hear about your petty issues. Not really.

... when you speak, you need to finish speaking as quickly as possible because everyone is just bored of what you're saying and you don't have anything of value to contribute anyway.

... people will only like you if you take medication, because the real you is not good enough.

... everyone thinks you're pretending, or "milking it".

... successes are accidents, circumstantial, easy for everyone to achieve, or not even noteworthy.

... your body is so tired at the end of the day, but your mind needs to go over every detail of the day, the week, the month, the year, every year since you born, before you can finally sleep from sheer exhaustion.

... you try so hard not to get sick, but your body just fails you. But it fails you so often that you're sure that people think you're just faking.

... you don't know if your feelings are real or if you're just "over-reacting because she's mentally ill" or "just sensitive because she has anxiety issues".

... you've told your story so many times that it's just boring to everyone - but you don't have any other story to tell.

... every problem that anybody has is your fault. And if you can't think why it's your fault, then it's because you are so selfish that you didn't even notice you were ruining someone's life.

... people are only your friend because they feel sorry for you.

... you're just waiting for your workplace to figure out you're completely incompetent, so you try really hard to not appear utterly useless.

... you've figured out what people don't like about you, so you try extra hard to not be those things - and instead come off as annoying in a different way.

... every time you're not invited somewhere it's because you are not wanted, or not really a friend. Because if you were - you'd have been asked, right?

... people only invite you to things because they feel sorry for you, or out of social obligation - so you say no so that you don't burden them with your presence.

... you are constantly on the verge of a major catastrophe, and that you need to constantly be prepared for it, but you don't know what it actually is, or when it is actually coming.

... you get that the people you love (and who truly do love you back) don't want you to die. But if you did, while it would hurt initially, eventually they would realise they are in fact better off without you in their life.

... if you don't commit suicide, then you're not that mentally ill.

I searched for an image that represented how I feel, but ultimately it was this image, from the first line of Google image search results for the words "mental illness" that spoke to me the most.

Miss SAMawdsley xx

Please note: This is not a plea for help. Ultimately, I am currently undergoing treatment on the NHS. I am technically classified as disabled, but I work full-time and lead what I like to think is a fun and productive life. This is just putting the figurative pen to paper on what being mentally ill feels like to me.

For clarity, I have been clinically diagnosed with generalised anxiety disorder, obsessive compulsive disorder, depression, complex post traumatic stress disorder, and thanatophobia.

• What does mental illness feel like to you?
• If you've never been mentally ill, can you imagine how it might feel?

OCD vs OCPD - there is a difference.

Please note: This is a rant. Or at least, it's as close to a rant as I can manage. I'm told by Macky that I'm not angry or sweary enough to truly rant, but here goes...

Have a look at this link. I'll wait. If you don't click and look, the rest of this blog post won't make sense. So go ahead and click.

19 things that will drive your OCD self insane.

So, did you feel the urge to straighten the pencils? Did you want to twist that one biscuit around so they all faced the same way? Probably. Because you have OCD, right? It's no big deal. Everyone is a little bit OCD, aren't they?

Well actually, no. You're not. You're "a little bit OCD" like I'm "a little bit pregnant". And I'm not pregnant. But I do have OCD.

If it seems like I'm slightly manic about this, it's because I am. This pervasive misconception that preferring things to be alphabetical equals suffering from OCD drives me to desperation because, like I said, I do have OCD, or Obsessive Compulsive Disorder, if you're out of the mental health loop. Both a psychologist and a psychiatrist have diagnosed me with OCD. And it's hard. It's a lot harder than many people would believe.

If you know me IRL, you'll know that I need to have volumes on an even number. I mean, I have to. I nearly killed my whole family leaping from the back seat to the front seat because my brother (who was driving) decided to test out just how badly I wanted the car stereo volume on an even number. In terms of compulsions, I am thankful that I have got off lightly. I do not have the debilitating need to wash my hands over and again or to open and close doors a set number of times. But even still, this aversion to odd numbers is not my OCD. This compulsion is simply the symptom that manifests on the outside and that you can see. No, OCD is much more than this and not many people understand. Some of my closest friends may not even understand.

You are all aware that I have thanatophobia (the fear of death). But having OCD as well means I am thinking about death constantly. I am not exaggerating when I say the only relief I get from thinking about my own mortality and the inevitable deaths of my loved ones is while on a football field. That's 90 minutes in the space of a week (a total of 10,080 minutes) that I don't think about death. And yes, I even think about death in my sleep. It is exhausting. It is so exhausting that last year I decided I couldn't take this life of constant fear and thinking about death anymore. I decided to kill myself. That is OCD. It is persistent, invasive, relentless. It is continuous thoughts that disturb the sufferer and ruins their life. It is not lining your pencils up on your desk.

There is another, little known, disorder called OCPD or Obsessive Compulsive Personality Disorder and this is more akin to what people believe OCD is like. People with OCPD have "a pervasive pattern of preoccupation with orderliness" whereas people with OCD  have "an anxiety disorder characterized by intrusive thoughts that produce uneasiness, apprehension, fear, or worry". OCPD manifests through "a chronic non-adaptive pattern of extreme perfectionism, preoccupation with neatness and detail" but OCD manifests through "repetitive behaviours aimed at reducing the associated anxiety... of thoughts that recur and persist despite efforts to ignore or confront them".

I am not trying to play "my pain is worse than your pain', I promise. My reason for writing this is because when I (or anyone else who is legitimately diagnosed) admit to having OCD, it is not as trivial as the general public believes it to be. While many people get funny about stereo volumes or like to have their pegs matching when hanging out clothes and they have this in common with some OCD sufferers, I assure you, these people don't understand the half of what living with OCD is like. And somebody saying "I am a little bit OCD about my pegs" is just insulting. You are finicky. You are a perfectionist. You are a control-freak. But you are not OCD. You are not even "a little bit OCD". Please don't presume to know the hell that an OCD sufferer lives in on a daily basis because you like your CD's to be in alphabetical order. It's like telling someone with a brain tumor that you have a little bit of a brain tumor too because you have a headache. Please stop. You are looking foolish.

Miss SAMawdsley xx

Questions

• Are you willing to admit to being guilty of claiming to be "a little bit OCD"?
• What are some common misconceptions that annoy you?

I reject your reality & substitute my own!

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My psychiatrist told me I have Borderline Personality Disorder. I rejected his diagnosis. Because that's how it works, right?

"Mrs Jones, I'm afraid you have cancer."

"No I don't. I am sick of young whippersnappers like you telling me what I do and do not have! Now give me a prescription for Endone and I'll be on my way!"

Is Mrs Jones' cancer like Schrodinger's cat? Unless she looks she neither has, nor does not have, cancer, right? Because that's exactly how I feel about BPD. I neither have, nor do not have, BPD - unless I go back to my psychiatrist. And I haven't. It's been nearly a year. It was March last year.

"Borderline personality disorder (BPD) is a psychological condition marked by a prolonged disturbance of personality function, characterized by depth and variability of moods.

The disorder typically involves unusual levels of instability in mood and black-and-white thinking, or splitting. BPD often manifests itself in idealization and devaluation episodes and chaotic and unstable interpersonal relationships, self-image, identity, and behavior; as well as a disturbance in the individual's sense of self."

To be diagnosed as BPD, a patient needs to present with five out of these nine symptoms.

* frantic efforts to avoid feared abandonment

I will do anything to avoid being abandoned. I have broken up with boyfriends, purely so they couldn't break up with me. When people move away, as people tend to do throughout life, I take it so personally. To me, the fact of the matter is I am not worth enough to them for them to stay near to me. Whatever the reason for the move (work, family, relationships, etc.) it is simply more important to the person than I am. And that hurts so deeply.

* intensity and instability in relationships

* suicidal behaviour, or acts of self-harm

I cut myself throughout high school. I would carve a sparkly spiral on my wrist whenever I was sad. If that was already bloody and scabby, I would carve a star into my ankle. I planned to kill myself in 2005. My dad went to football on Monday nights. On the Sunday, I decided to wait until he went to football and then take every tablet I could find and lay down in bed. If I was still alive when Dad got home, he would just assume I was sleeping & leave me be & I'd be dead by the morning.

Last February I made an attempt. Late one night, I was so overwhelmed by everything that I got up from my bed & headed towards the kitchen of my shared unit for a big sharp knife. As I walked past my housemate's room, I felt a small voice creep up & I squeaked out his name. The sound of my voice, so pitiful, terrified me and I ran back into my room sobbing hysterically. My housemate came running into my room to find me begging him not to let me kill myself. He'd later tell me I had screamed his name & sounded terrified, not pitiful.
These days, I discovered I have physical urticaria. I can stratch myself, feel pain, see an angry red weal & know it will be gone by morning.

* an unstable self-image or sense of self

This is a huge one for me an I have trouble explaining it. I believe I am very different to other people. I don't understand the way other people's brains work and why they do what they do. I'm confused by basic human interactions and am always paranoid that I am doing it wrong. I feel like I wear myself as a costume that fools people but inside this costume is a weird alien who desperately pretends to be normal. It's really hard to describe...

* impulsive behaviour (eg. spending, substance use, reckless driving, sex, binge eating)

* emotional instability due to reactivity of mood

I am shocking with this. The smallest things affect my emotions and they do it in a huge way. A few careless words can send me deep into a spiral of sadness and paranoia. I analyse everything and come to conclusions that are usually painful to deal with and upsetting to me. I hate going to the grocery shops and will come home in a bad mood that I have been known to take out on people I love. Recently, I got insanely angry at my dog for not helping me carry my groceries into the house. Yeah, I know...

* chronic feelings of emptiness

This could be BPD and this could be thanatophobia / existential anxiety. Either way, I absolutely cannot fathom the point of life. I sit and ponder why... just, why...? I am the kind of person who needs goals. I am that donkey that will only walk if there is a carrot dangling right in front of me.

* intense, inappropriate or uncontrollable anger

In grade 10, a guy in manual arts was teasing me. The next thing I remember, my friend touched me on the shoulder. I had opened my tool cabinet, grabbed a chisel & was making my way towards him while the class looked shocked. I describe the part I don't remember as 'red'. It's like my memory was replaced by blindingly bright red. And getting angry at my dog for not bothering to help me carry groceries is not exactly appropriate, is it?

* paranoid thinking under stress or 'dissociative' symptoms

I play football. I'm pretty good. But I won't try to do anything - tricky passes that I am perfectly capable of doing or dribbling the ball up the field, taking on a player - because I am so paranoid the team will hate me if it goes wrong. Even though if they do the same, I'm OK & just yell out encouragement. Some players haven't come back this season. I am convinced it is my fault. I don't know why, I just am. They were there last season when they didn't know I had joined the team, but they won't come back this season.

If someone is upset - or I perceive they may be upset - I believe it's my fault. I usually can't think of a logical reason why it's my fault. And then I believe that it's because I'm so selfish and such a bad person that I didn't even notice what I did to upset them. It's exhausting being so paranoid.

And the dissociative symptoms? I have repressed so much of my life - moments I have been stressed, movie endings that have upset me, confrontational conversations... I just dissociate and somehow come out the other end alive.

It's still something I am considering - whether to accept this diagnosis or not. And in all honesty, this is the main reason I don't want to accept the diagnosis:

"Pejorative terms to describe persons with BPD such as “difficult,” “treatment resistant,” “manipulative,” “demanding” and “attention seeking" are often used."

Imagine a trained professional basically saying to you, "you are mentally ill. How do I know? Because you are difficult, manipulative, demanding and attention-seeking." It hurts. I'll tell you that. Luckily, the few people I have told this to have laughed. They say that if they were to describe me, they would never ever use any of those words. Except "attention-seeking". But they would use it in the "I like to be the centre of attention by being bright, bubbly and entertaining - not by faking drama or making stuff up to get attention. They understand that I am still 'me'. And if 'me' has BPD, so be it. They still love me for who I am, mental illnesses and all.

You may think I am being too open and revealing by writing this blog post. But I am me. If I wrote about the complications of pregnancy, that would be fine. If I wrote about having diabetes, that would be fine. If I wrote about actually being diagnosed with cancer, that would be fine. Obviously they would all be sad, but  in revealing my tragic medical history, I wouldn't be revealing too much. Well I have a mental illness. I have Obsessive Compulsive Disorder. I have thanatophobia / existential anxiety. I may have Borderline Personality Disorder. And if I do, that kind of sucks... but I refuse to be ashamed of it. Like the ad says, "I can treat my mental illness. I can't help how you treat me."

Miss SAMawdsley xx

Questions:

• Do you have a mental illness that you have kept hidden? Why?
• What is your opinion on being open about having a mental illness?
• Have you pledged to support a change in attitudes to mental illness? PLEDGE NOW